This post will be longer and more
informational than usual. I’ll get graphic in places, so bear with me. Everyone
is different, but it may help someone.
BTW: my internist appt. went well. Re
the eye problem I’ve been having and discussed previously here: he wants to hold
off on an MRI of my head until chemo is over, as that may be causing it. The
chemo nurse disagreed. I’ll talk to Tracy and son David later tonight and make a
decision. The chemo nurse had never seen anyone with the same problem.
🤔
Jeni, the chemo nurse
I had chemo #5 last Tuesday. It takes 5 1/2
hours. They use the port I had implanted in the upper right hand side, just
inches above my breast with an incision in the neck. (A port is a small medical
appliance that is installed beneath the skin. A catheter connects the port to a vein. You
can feel it beneath your skin... shaped like a small triangle.)
I take 3 steroids with dinner the night before
and 3 again with breakfast. Then 1 for the next three days morning and night.
(Doctors have found that the treatment is more successful when steroids are
given along with chemotherapy drugs.)
I also take 1 Emend just before chemo and the
next two days with breakfast. Please see another post where I discuss this
hideously expensive drug. But it works.
Here’s a list of what’s in the 5 bags given
during my chemotherapy session via the port.
- Zofran and decadron (Both help with nausea, but remembered ber I also take Emend)
- Famotidine (lowers stomach acid)
- Benedryl (which is supposed to put you sleep, but doesn’t work for me)
- Taxol (a cancer medication that interferes with the growth and spread of cancer cells) Its the one that makes your hair fall out. Not all of mine is gone, but most of it. No eye lashes, but still have eyebrows.
- Carboplatin (Used for advanced ovarian cancer. I am stage 3c. It is used with other chemotherapy ...in this case, Taxol, as a first line treatment. Carboplatin is the one that makes everything you eat taste like metal. Fortunately, so far, this has not happened.)
Before you leave, the nurse puts a neulasta
“machine” on my arm.
In about 10 minutes, you feel a little electrical shock.
Weird. Photo here. You wear it for 27 hours...a little green light flashes
(which I spent 15 minutes looking for in the middle of the night, until I
realized it was me! Duhhhhh.) it flashes after about 24 or so hours and the
green light stops. But they want you to leave it on the full time.
This Drug Is Used For:
- This medicine is used to stimulate the growth of "healthy" white blood cells in the bone marrow, once chemotherapy is given. White blood cells help the body to fight infection. This is not a chemotherapy drug.
- This medication is usually given at least 24 hours after chemotherapy. Really important. It is often given by injection, but these little machines are nifty. No showers for two days until this is off and port healed. (which is bandaged)
Day 1. Chemo day. Feel fine, super
energetic. Making dinner even. ( you cannot eat out for 10 days and you must
wear a mask in public places for that long too.) No nausea, hungry all the time.
Did I ever mention that chemo increases your metabolism? In my case, this is a
plus. A good day, if you don’t mind sitting for 6 hours and peeing constantly.
You must drink copious amounts of water all through chemo and I really press it
down the first 10-12 days (more than the 8 bottles they recommend) and then
after 10 days, less, but still the required 8 bottles a day. Have I mentioned I
hate water? My preference is iced tea, which I sneak in twice a day. Does not
count as water though. ☹️ You spend
all your time in the loo. I wear a smallish pad all day and a bigger one at
night. You really want to flush that bad stuff out. I used 4 pads just during
chemo. I also, at Tracy’s suggestion, bought some of those “pee pads” the
hospital uses. We got them at a pet store, believe it or not. But the main
problem is not the bed, but the minute I get up, I am flooded. So I also cover
the carpet with towels. I know, gross. Haven’t had an accident yet, but might as
well CYA. Literally. ☺️
The rules: No sugar, no soy products, no
salads, no rare meat or fish. We wash all veggies and fruit at home with a
mixture of white vinegar and water, then rinse.
Day 2. Pretty good day. Feel well, took walk,
made dinner. Started to feel tired after dinner. Had one super bad hot flash
(pillow and sheets get wet.) during the night, but expect to have many
more.
Day 3. This is supposed to be worst day, but
I’m not feeling too bad. A little weak, but took a walk, did laundry, dishes
etc. But by the end of the day the night sweats began again and lasted two
days.
Day 4. Still a little weak, still heavy
sweats.
Day 5. Sweats gone. Today starts two days of a
lot of bathroom trips with a little cramping. Not diarrhea, but just two days
and nights of trips to the bathroom. Sometimes I take Imodium, but try not to
as I think my body is getting rid of bad stuff.
And don’t forget all the water you must drink.
Constantly
We actually went to the beach today! Probably
not a good idea, but makes you feel better mentally.
Day 6. Tracy had to leave as she’s moving, but
I managed the airport drive. It exhausted me.
Day 7. At this point, recovery usually starts,
but I’m finding almost any exertion is tiring me. It’s taking longer this time,
which I was warned it would. I can usually get to the gym (treadmill and bike)
by day 8 or 9. And take classes again by day 10. Doubt I can stay on that
schedule this time. Some housework and grocery store are going to be it
today.
Two additions: today, for the first time, I had a back ache. In the middle of my back, as though it was tired. I took Advil, it went away. The second, neuropathy. (We were told about this one in advance, but never had a problem with it until now: a couple days ago, I noticed that my feet and part of my lower legs were a little numb. That has remained, but doesn't bother me much.
Day 8: Yes, I did go to the gym. Did 1 3/4 miles on the bike and 1 mile on the treadmill. At the end, my lower back ached and so did both my hips. (I had a hip replacement many years ago) These things are both new and both only lasted until I took Advil.
Tomorrow I will try a class.
Two additions: today, for the first time, I had a back ache. In the middle of my back, as though it was tired. I took Advil, it went away. The second, neuropathy. (We were told about this one in advance, but never had a problem with it until now: a couple days ago, I noticed that my feet and part of my lower legs were a little numb. That has remained, but doesn't bother me much.
Day 8: Yes, I did go to the gym. Did 1 3/4 miles on the bike and 1 mile on the treadmill. At the end, my lower back ached and so did both my hips. (I had a hip replacement many years ago) These things are both new and both only lasted until I took Advil.
Tomorrow I will try a class.
I probably won’t post again until after the
6th chemo is over and we find out what was accomplished.
Thanks for hanging in there with me!